Ungakusingatha kanjani ukuhlala ubusuku bonke ezinganeni ezinesifo sikashukela

Imfundo Yezempilo

Lapho indodakazi yakhe eneminyaka engu-9 ubudala u-Addison efika ekhaya evela ephathini yakhe yokuqala yokulala, wayejabule kakhulu, kuchaza uSarah Paul, waseGermantown, eWisconsin. Ekugcineni wathola ukuba nabangane bakhe emzini womunye umuntu. Wayazi ukuthi kwakuyisinyathelo esikhulu.

U-Addison uhlale nohlobo 1 lwesifo sikashukela (T1D) kusukela eneminyaka engu-2 nohhafu. Ugqoke ubuchwepheshe obusindisa impilo ukumnikeza i-insulin nokuqapha amazinga e-glucose egazi aguqukayo kusukela eminyakeni yobudala engu-3. Kodwa wayengakaze aqale ukulala.

Izingane ezinesifo sikashukela sohlobo 1 azikhiqizi i-insulin, i-hormone eguqula ukudla kube ngamandla. Ngaphandle kwe-insulin — noma i-insulin eyanele — ukudla kuguqulwa kube ushukela (noma ushukela), kodwa umzimba awukwazi ukukusebenzisa. I-glucose eyeqile ingadala i-ketoacidosis yesifo sikashukela. I-glucose egazini ephansi ingadala ukudideka, ukujuluka, ukuqhaqhazela, ukulahlekelwa ukwazi nokuquleka. Zombili izinhlangothi zohlangothi zingaba yingozi, zize zibulale, futhi zidinga ukwelashwa ngokushesha — kwesinye isikhathi ngisho nohambo lokuya esibhedlela ukuyolungiswa.

Ngephathi yokulala ephephile, ingane futhi abazali ababambayo badinga ukwazi ukuthi bangawaqapha kanjani amazinga kashukela egazini nokuthi aphathwa kanjani aphezulu noma aphansi ngokufanele. Kungasabisa abazali bezingane ezinesifo sikashukela ebuntwaneni. Kepha, kuhlala kunendlela yokwenza izinto zisebenze ukuze izingane ezinesifo sikashukela sezingane zingabamba iqhaza kuma-sleepovers, amakamu, noma eminye imisebenzi ebandakanya ukuhlala kwenye indawo ubusuku ngokuzimela.

OKUSHIWO: Ingane yakho itholwe ukuthi inesifo sikashukela sentsha. Yini elandelayo?

Ungayilungiselela kanjani i-sleepover enesifo sikashukela sentsha

Njengazo zonke ezinye izici zokuphila nesifo sikashukela ebuntwaneni, ukulungiselela ukuhlala ubusuku bonke kubalulekile. Yonke imindeni yehlukile, kepha ukube ubungasho ukuthi yebo ku-sleepover ngaphandle kwesifo sikashukela, khona-ke usebenza ukuyivuma ngesifo sikashukela, kusho uDiane Herbert, uthisha oqinisekisiwe wesifo sikashukela futhi onguthishanhloko Izindaba ze-E1c , inkampani yokubonisana nesifo sikashukela esePhiladelphia.

Iyiphi indlela engcono yokulungiselela? Ochwepheshe besifo sikashukela — nabazali asebeke babhekana naso — babelane ngalezi zinyathelo.

Bamba iphathi yokulala, noma qala ngokulala ngaphansi.

Abanye abazali balala ngaphansi, kusho uHerbert. Yilapho-ke lapho ingane ihlala khona sekwephuzile endlini yomngani, ishintshe ibe amaphijama, kodwa iye ekhaya ngaphambi kokuyolala ngempela. Ukwenza i-sleepover ikakhulu kuya ngeminyaka yengane, usho kanjalo.

Ngaphambi kokuhlala kwakhe okokuqala endlini yomngani, indodakazi kaSarah u-Addison wayevunyelwe ukuba nabangane balale kwakhe — kodwa wayengeke akwazi ukuhlala ezindlini zabo kuze kube yilapho azi ukuthi angawahlola kanjani amazinga akhe kashukela nokuthi aphathwe kanjani aphezulu noma aphansi amazinga ngokufanele.

Yenza ukuhlolwa kokuzimela ngaphambi kokuhlala ubusuku bonke.

Uma ingane yakho ilawula isifo sayo sikashukela sentsha, ngokuzihlola ngokwako amazinga eglucose egazini, yenza izinqumo zokufakwa kwe-insulin ngokuya ngalokho okudliwayo, kanye / noma ukushintsha izingxenye zepompo ye-insulin ngokuzimela, sekuyisikhathi sokuyihlola ekhaya ebusuku.

Khetha usuku lomcimbi, uhlehle emuva cishe inyanga noma ngaphezulu, bese ulungisa wonke umuntu futhi unethezekile, kusho uHerbert. Yakha amakhono ngokuhamba kwesikhathi. Isikhathi sokuyifunda akusilo usuku lwe-sleepover.

Khuluma nabazali abasingethe ngemithwalo yemfanelo ye-T1D.

Umama ka-Addison wayefuna ukuzizwa ekhululekile ngokuqonda kwabazali ababambe iqhaza ngomthwalo obandakanyeka nesifo sikashukela sezingane. Umama womngani wakhe wangithinta futhi wabuza ukuthi ngabe u-Addison angafika yini futhi saba nengxoxo kusuka lapho, kusho uSarah. Wayengazi lutho ngesifo sikashukela, futhi ngaya endlini yakhe ngambonisa imishini u-Addison ayisebenzisayo. Umama wehlise ngokushesha ukuthi basebenza kanjani, waba nejusi eyengeziwe esandleni, wathi uzogcina ifoni yakhe ivuliwe ubusuku bonke uma kwenzeka ngidinga ukuxhumana naye.

Okungenani, abazali bezingane ezinesifo sikashukela kufanele babhale uhlelo oluphuthumayo lwabazali abasingethe, kusho u-Anastasia Albanese-O'Neil, uthisha oqinisekisiwe wesifo sikashukela kanye noprofesa osizayo emtholampilo kanye nomqondisi wezemfundo yesifo sikashukela nokusebenza kwemitholampilo Inyuvesi yaseFlorida.

Bhala uhlu lokuthi wenzeni ezimeni ezithile.

Kufanele ifake phakathi ukuthi ungayihlola kanjani futhi uyiphathe kanjani i-glucose ephansi egazini, izimpawu zama-ketone [avela emchameni noma egazini lapho amazinga ephezulu] namagama nezinombolo zocingo zalabo ongathintana nabo ukuze uthole usizo, kusho i-Albanese-O'Neil.

Pakisha konke okuzodingeka ingane yakho ukuze izilawule ngempumelelo isimo sayo.

Lokhu kungafaka:

• Izirinji kanye ne-insulin uma ingane yakho ithatha isibhamu
• Iphampu ye-insulini kanye noshintsho lwezinsizakusebenza uma ipompo lingadinga ukuguqulwa ngenkathi lisembusweni
• Imitha le-glucose elinamabhethri angeziwe
• Imichilo yokuhlola
• AmaLancets notshwala
• Umthombo kashukela osebenza ngokushesha njengamabhokisi amajusi ambalwa noma isitsha samathebhu kashukela
• Ukuqapha okuqhubekayo kwe-glucose uma ingane yakho isebenzisa eyodwa
• Ishaja yepompo ye-insulin kanye / noma ukuqapha kwe-glucose okuqhubekayo, uma kudingeka

Fundisa ingane yakho ukukhuluma.

U-Addison usebenzisa i-glucose monitor (CGM) eqhubekayo ezwa ukude ukushintsha kwe-glucose, kanye ne-insulin pump eletha insulini kancane usuku lonke futhi evumela nomsebenzisi ukuthi athathe i-insulin eyengeziwe ngaphambi kokudla ngaphandle komjovo njalo.

Enganeni engasebenzisi i-CGM noma ejova i-insulin esikhundleni sokusebenzisa ipompo ye-insulin, ingane idinga ukuhlola amazinga eglucose egazini njalo futhi isebenze ngokufanele, noma isebenze nomzali ophetheyo ukwenza kanjalo.

U-Albanese-O'Neil weluleka ukuthi ulungiselele ingane yakho ukuthi ikhulume nabangane nabazali bayo ngesimo sabo. Banikeze ulimi oluthile ukuze bakhulume ngesifo sikashukela sabo ukuze bazizwe bekhululekile futhi bezethemba, esho.

Khuthaza ingane yakho ukuthi ihlale ixhumana.

Uma ingane ikwazi, epompini, ingahlola bese ilungisa okuphezulu, noma ishayele ekhaya bese ilandela imiyalo yomzali yokwelapha imali ephakeme ngenani elithile le-insulin, kusho uGary Scheiner, ofundisa isifo sikashukela oqinisekisiwe nomnikazi futhi umqondisi wezokwelapha we Izinsizakalo Ezihlanganisiwe Zesifo Sikashukela waseWynnewood, ePennsylvania.

Noma izingane zikhule ngokwanele ukuphatha isifo sikashukela zodwa, akukaze kube buhlungu ukuphinda uhlole umthamo nomama nobaba, noma uqinisekise ukuthi benza okufanele. Bazise ukuthi kulungile ukuthumela umqhafazo noma ukufonela ukuqinisekiswa nosizo — noma ngabe kunini ebusuku.

Funda ukudedela, kancane.

Ngalobo busuku bokuqala, ethembele kubuchwepheshe besifo sikashukela asigqokile eminyakeni eyisithupha edlule, uSarah wabuka amazinga eglucose egazi lika-Addison ngohlelo lokusebenza lwe-smartphone. Ngoba uSarah ujwayele ukuqapha i-Addison ekhaya-ubusuku bonke ngokuvuka njalo ukubheka kabili amazinga e-glucose (i-CGM idinga ukulinganiswa ngezinduku zeminwe) -kwakunzima ukuyibuka kude. Angizange ngithole ubuthongo ekugcineni kwami, kodwa uzizwe ezimele ngokwengeziwe, kusho uSarah. Sizama ukumvumela abe yingane futhi abe nokujwayelekile ngangokunokwenzeka.

Lindela okungajwayelekile okuthile.

Ngenxa yokudla okuhlukile nemisebenzi enezikhathi zokulala ubusuku bonke, uScheiner uthi akufanele wethuke ngezinye zezinguquko. Ungalindeli ushukela wegazi ojwayelekile onalezi zinhlobo zemicimbi, njengoba zingavuka noma zehle uma ingane ijaha abanye endlini phakathi kwamabili noma idla amaDoritos esikhwameni esikhulu, usho kanjalo. Akudingeki ukuthi ube nokulawulwa okuhle koshukela wegazi kulezi zimo. Ungethuki uma ingane yakho [ifunda ushukela egazini] kuma-200s ezimweni ezinjengalezi.

Isifo sikashukela akufanele siphuce ingane yakho okuhlangenwe nakho okuvamile okuhambisana neminyaka. Ama-Sleepovers awumkhuba okhethekile wobuntwana futhi izingane ezinesifo sikashukela kufanele zibambe iqhaza kuzo uma kunokwenzeka, kusho i-Albanese-O'Neil. Yize kuzodinga ukuhlelwa okwengeziwe kanye nesidingo sokufundisa umndeni ophethe, umvuzo wezinkumbulo zempilo yonke uwufanele umzamo.