Ingane yakho itholwe ukuthi inesifo sikashukela sohlobo 1. Yini elandelayo?

Imfundo Yezempilo

Ukuthola ukuthi ingane yakho inesifo sikashukela sohlobo 1 ngumshintshi womdlalo. Kufana nokushayelwa ezweni ongalijwayele, lapho udinga khona ukufunda ulimi olusha nenkambiso yansuku zonke. Yize ezinye izinto zingabonakala zijwayelekile, njengokudla nokuzivocavoca umzimba, ezinye izinto zintsha ngokuphelele, njengokuthatha i-insulin nokuhlola amazinga eglucose egazini. Ukuzulazula ngesifo sikashukela sobuntwana nokwenza konke kusebenze ngempumelelo kudinga indlela entsha ngokuphelele yokucabanga nokwenza.

Kungaba okwethusayo futhi okucindezelayo — kuwe futhi eyengane yakho.

Uhlobo lwesifo sikashukela sohlobo 1 luthinta kanjani umzimba wengane yakho?

Thayipha isifo sikashukela sohlobo 1 (T1D), kwesinye isikhathi esibizwa ngokuthi yisifo sikashukela sentsha, kwenzeka lapho umzimba wengane yakho uyeka ukukhiqiza i-insulin, ihomoni esiza ukuguqula ushukela (ushukela) ekudleni ube ngamandla. Ngaphandle kwawo, umzimba awukwazi ukulawula ngokwemvelo amazinga kashukela egazini. Ngakho-ke, ingane yakho kufanele ithole i-insulin emthonjeni ongaphandle — ijojwe ngomjovo noma ifakwe emzimbeni yidivayisi ebizwa nge-insulin pump. Ngaphandle kwalokho, amazinga kashukela egazi angakhuphuka kakhulu, okungadala izinkinga eziningi zezempilo zesikhathi eside kusuka ekungaboni kuya ekulimaleni kwezitho nezitho zomzimba uma ungelashwa.

Ukuze uqiniseke ukuthi amazinga kashukela egazini ahlala ebangeni eliphilile lapho ingane yakho idla, kufanele uthathe ithonsi legazi endukwini bese usebenzisa idivaysi ebizwa nge-glucometer ukuyivivinya. Umphumela ngamunye uqondisa ukuthi mangaki amagremu ama-carbohydrate ingane yakho engawadla, umthamo we-insulin, noma ukuthi ingane yakho idinga ukuzivocavoca okungakanani. Ushukela wegazi ophakeme akuyona ukuphela kwendaba. Ushukela wegazi ophansi ungadala izinkinga lapho ingane yakho ine-insulin eningi futhi ingenakho ukudla okwanele emzimbeni. Kuningi ukuphatha.

Ungayisiza kanjani ingane enesifo sikashukela?

Sibuze abazali abaningana kanye nochwepheshe besifo sikashukela ukuthi yisiphi iseluleko abangasinika labo ababhekene nokutholakala okusha kwe-T1D kwengane. Nawa amathiphu abo.

1. Funda izisekelo.

Ukuphathwa kwesifo sikashukela kuhilela ukulinganisela ukudla, ukuzivocavoca, imishanguzo, nokuhlola bese kuphendula amazinga e-glucose egazi. Alikho ikhambi lesifo sikashukela sezingane, kodwa kunezindlela zokwelapha ezisebenza kahle kakhulu. Ukuqonda ukuthi isici ngasinye sisebenza kanjani emzimbeni kubalulekile ekuphatheni ukunakekelwa kwengane yakho.

Imfundo yawo wonke umndeni ibalulekile, kusho uJennifer McCrudden, i-APRN, i-FNP-C, i-CDE, ingcweti yomhlengikazi ongumhlengikazi kanye nothisha oqinisekisiwe wesifo sikashukela. Ukuzifundisa ngokufunda izindatshana ezikhuluma ngesifo sikashukela kumawebhusayithi avela kwi-JDRP noma i-ADA, ukufuna amaqembu okweseka, ukuya ezingqungqutheleni, kuyasiza kakhulu.

I-American Diabetes Association (ADA) inikeza a thayipha ibhukwana 1 lokunakekela isifo sikashukela njengokulanda mahhala ukusiza ukukuchaza konke. Khuluma nethimba lezokunakekelwa kwempilo yengane yakho, bese ubuza yonke imibuzo ongayicabanga — ikhona ukukusiza ujwayele ukuxilongwa kwengane yakho.

2. Thatha izinto usuku ngalunye ngesikhathi.

Ngenkathi ungaqonda ukuthi isifo sikashukela sisebenza kanjani ezingeni lobuhlakani, iqiniso ukuthi kwesinye isikhathi kungenzeka izinto ezizwakala sengathi ungazilawuli. Lesi kungaba yisikhathi esinengcindezi nesesabekayo enganeni kepha nakumzali, kusho uMcCrudden. Izinaliti zingaba buhlungu noma zikhathaze ukukhathazeka ekuqaleni. Noma, mhlawumbe ingane yakho inamahloni ngokubhekana nalesi simo phambi kwezinye izingane noma izizwa njengomthwalo.

Ukuphathwa kwesifo sikashukela kuyisenzo sokulinganisela, kusho uLisa Goldsmith, waseNatick, eMassachusetts, ondodakazi yakhe yatholakala ineminyaka engu-7. Ungenza yonke into kahle bese uthola ushukela wegazi ophakeme noma ophansi. Akuyona isayensi ngqo futhi awusoze waphelela. Kepha uzothola inqubo futhi wakhe okusha okujwayelekile. Lapho nonke nijwayela lesi simo, izinsuku eziningi nizoba nazo.

3. Cela ubuchwepheshe.

Ukuphathwa kwesifo sikashukela ezinganeni kudinga amathuluzi amaningi: imijovo, i-insulin, imitha yokuhlola ushukela egazini, imichilo yokuhlola, izindwangu zotshwala nezinye izinto. Abantu abaningi bacabanga ukuthi imijovo ukuphela kwendlela yokuthola i-insulin kanye nemichilo yokuhlola iyona kuphela indlela yokukala ushukela, kepha alukho uhlelo lokulawulwa kwesifo sikashukela esilingana nosayizi owodwa. Ngomjovo, izingane zivame ukudinga ezimbili noma ngaphezulu ngosuku. Abanye bakhetha ukusebenzisa ipompo ye-insulin, into egqokekayo ehambisa i-insulin usuku lonke futhi engayisebenzisa i-insulin ngaphambi kokudla ngokucindezela inkinobho, kunokuyisebenzisa ngomjovo.

Kunentuthuko eminingi kakhulu kubuchwepheshe besifo sikashukela, kusho uMcCrudden. Ngingaluleka iziguli ukuthi zihlangane nomfundisi wesifo sikashukela onolwazi ngazo zonke izinketho ezikhona laphaya.

Iphampu ye-insulin ingenza kube lula ukugcina amazinga kashukela egazini emazingeni anconyiwe (yize kusadinga ukuqapha okusondele). Kukhona nedivayisi egqokekayo yokuhlola ushukela wegazi owaziwa njenge-glucose monitor (CGM) eqhubekayo engathumela amazinga eglucose egazini kudivayisi ephathekayo noma i-smartphone. Ama-CGM angabonisa kangcono ukuthambekela emazingeni e-glucose kunezinti zomunwe namamitha, kepha kudinga ukugqoka inzwa emzimbeni isikhathi esithile.

Ngincoma kakhulu ukuthi ingane yakho ithole i-CGM, uma kungenzeka kuwe futhi uma ingane yakho ikwazi ukwenza lokhu, kuphakamisa uSusan Cotman, waseWayland, eMassachusetts, ondodakazi yakhe yatholakala eminyakeni emibili edlule. Kulethe ukuthula okukhulu kwengqondo, kodwa futhi nokuqonda kangcono ukuthi i-glucose yegazi yendodakazi yami iphendula kanjani ekudleni ekudlayo nasekuzivocavoca umzimba. … Ukubona amazinga akhe kashukela ngemininingwane ethe xaxa ne-CGM, uma kuqhathaniswa nokuhlolwa ngomunwe ngezikhathi ezithile, bekungivula iso langempela, futhi kungifundise ukuthi lokho ebengicabanga ukuthi ngiyakuqonda mayelana nokudla okunomsoco nokuthi kuthinta kanjani umzimba womuntu akusilo iqiniso, ikakhulukazi kumuntu umzimba wakhe ongakwazi ukwenza i-insulin.

Kepha ukuba nobuchwepheshe obusizayo akubuyiseli ukucabanga ngokukhetha ekudleni, ekuzivocavoca umzimba nasekukhupheni i-insulin Umbono oyiphutha omkhulu ukuthi lawa madivayisi azokwenzela isiguli konke, kusho uMcCrudden. Isiguli kusadingeka sibe nobuchule ekufundeni ukuthi ingaxazululwa kanjani inkinga. Ngenkathi le divayisi isekela, isiguli sidinga ukwenza izinqumo futhi sihlanganyele ekuzinakekeleni kwaso, kusho yena.

4. Thola ukwesekwa.

Ukukhuluma nabanye abakutholayo kungakunika ukuzethemba nokuqonda mayelana nosuku nosuku lwakho olusha. Kungazizwa kunzima, kodwa awuwedwa. Izingane kanye nentsha engu-18 400 batholakala ukuthi banayo thayipha isifo sikashukela esingu-1 minyaka yonke. Thola umuntu ongokoqobo ozokuxhasa, ungakwenzi wedwa, kusho uMoira McCarthy, umbhali we Umhlahlandlela Wezingane Onesifo Sikashukela Sentsha . Indodakazi yakhe uLauren yatholwa eminyakeni engama-22 edlule eneminyaka engu-6.

Thola omunye umzali noma umuntu omdala one-type 1, uyeluleka. Kukhona njalo izindlela zokuzithola. Ungashayela isahluko sendawo seJuvenile Diabetes Research Foundation (JDRF) noma i-ADA, noma ubuze i-endocrinologist yakho uma kukhona amaqembu omphakathi lapho ungathola khona abanye ongakhuluma nabo. UMcCarthy uyavuma ukuthi kunamaqembu amaningi asekelwa online kepha uyaxwayisa ngokuwasebenzisa kuphela. Ku-inthanethi, kungaba nokwesaba okuningi futhi akuhlali kusekelwe eqinisweni, usho njalo. Ukuxhuma nabantu abake bathola ukuxilongwa ngohlobo 1 kungasiza umndeni wakho ulungise.

5. Gcina amaphupho ephila.

Ungasivumeli isifo sikashukela sishintshe lokho obulokhu ucabanga ukuthi ingane yakho ingakufinyelela. Ngemuva kokutholakala kwendodakazi yakhe eneminyaka engu-7, uGoldsmith wezwa izeluleko ezithile zobuhlakani: Wonke amathemba namaphupho engibe nawo ngoMadelyn izolo kusengaba yilawo wonke amathemba enginawo ngaye namhlanje, kusho yena. Ngizama kanzima ukungavumeli uMadelyn azizwe njengesisulu salesi sifo. Uma kunomdlalo awuthandayo, angadlala. Wayefuna ukuya enkambeni yobusuku bonke, futhi sathola indlela yokumthumela nokuthi aphephe. Kuzothatha ukuhlela okuningi ngaphambi kokuphatha ekusithekeni, kepha ngazithembisa ukuthi ngizothola indlela yokumsiza enze konke afuna ukukwenza.